Easy Gluten Free Living

By now it is Thanksgiving 1987 and I am down to 100 pounds and beginning to feel so weak that I can hardly keep up with my family.  It takes all my strength to get my kids off to school and my husband off to work in the morning.  My house is a wreck, dishes are piling up in the sink.

I am feeling numbness in my face and tingling in my hands.  I am constantly hungry and extremely thirsty.  After I eat, I have extremely bad stomach aches and bloating.  I can’t venture too far from home due to the need of being near a bathroom at all times.

I need to go Christmas shopping for my children, but I am so weak by now that I spend most of my days in my pajamas and robe.  Nothing seems to help and my PCP really can’t tell me what is wrong.

Finally, the last straw for my husband is the weekend after Thanksgiving.  We were at my in-laws for the weekend and I just couldn’t wait to get home.  The diarrhea is almost non stop now.  If I eat, I need a bathroom, period. 

My husband tells me to call my gynecologist.  So first thing Monday morning I do.  Thankfully, he gives me the name of a gastroenterologist.  I call him, go see him, and schedule a biopsy of my small intestine.  This in itself is a miracle, because there weren’t a whole lot of Doctors with any knowledge of Celiac Disease back then.  Thank you Dr. Richard Raizman for saving my life.

The biopsy shows that the villi in my small intestine is pretty much gone.  Villi are microscopic hair like fingers in your small intestine that greatly increase the surface of your intestines so that your body can catch and absorb digested nutrients that your body needs, more efficiently.

The diagnosis, I have Celiac Disease or at that time they called it Celiac Sprue.  Basically, the food I am eating is poisoning me.  I am told I need to cut out all foods with gluten in my diet.  No bread, no pasta, no pizza, nothing with wheat, barley, rye, or oats.  At first, I really have no idea what this is going to mean for my family and I.

Then I go to the grocery store and begin reading labels.  Do you know that gluten or wheat is found in almost every processed food?   Soups, cereal, gravy, soy sauce.  It is hidden in just about everything that I have fed my family over the past 11 years that my husband and I have been married.  I am devastated.

Unlike now, store bought gluten free food is almost non-existant and what is out there is awful.  It tastes like saw dust.  When my husband and I got married I didn’t know how to cook.  His love and encouragement helped me to become a great cook.   Now I have to start all over again and re-learn how to make good food that won’t kill me.

My story continues tomarrow.

Mary Blackburn

Living Gluten Free