Easy Gluten Free Living

Posts Tagged ‘Celiac Disease Tests’

I thought I should let you all know why I have been  missing in action this week.

After 22 years of a gluten free diet and never having any follow-ups, my daughter thought that I should have a check up. 

I’ve been having some indigestion type discomfort for the past several months.  My daughter is a Cardiovascular Technologist in the cath lab of one of the major hospitals in Pittsburgh, so naturally we went down the road of ruling out heart disease.  I had a walking stress test which was fine, in fact the cardiologist told me that my “heart was as healthy as a horse”.  Thank you, I think. 

So next off to the Gastroenterologist.  She read my diagnosis from 22 years ago, asked me my age and said, “I want you to have an Endoscopy and a Colonoscopy.  Yeah

So this week I’ve been preparing for my tests that I had done yesterday.  Monday night was my last real meal.  Tuesday was a day of all liquids.  That was fun, especially being at work. 

Tuesday evening at 6:30 pm I got to start my magic elixer.  It wasn’t a glass of fine wine, but it didn’t taste as bad as everyone kept telling me it would.  I’ll spare you the details of what happened over the next 3 hours, but bright and early Wednesday morning I was off to the hospital for my tests.

The testing went smoothly and a lot faster than I anticipated.  I got most of the results back right away.  Everything was normal and the doctor said that there was some rippling typical of celiac disease but not abnormal.  In fact if he wouldn’t have known I had Celiac Disease he would not have attributed the rippling to that.   So my vigilance of a gluten free diet has been successful. 

Proof positive that if you are careful, watch your diet and stay on a gluten free diet.  You can stay healthy, even without follow up medical attention.

Oh and the diagnosis for my digestive discomfort?  Acid Reflux.  So I take an acid controller twice a day.  Well at least I know I’m still healthy.

Celiac disease is a very common, yet very under diagnosed, incurable, hereditary, autoimmune disease.  Recent studies show that one  in 133 people , in the United States alone,  are affected by celiac disease.  The reason that it is so under diagnosed or misdiagnosed is because the symptoms can be so varied.

With most diseases there are a set of symptoms that are basically typical to that particular disease.  However, celiac disease has a broad spectrum of symptoms, none of which are “typical.”  Symptoms are triggered by the ingestion of gluten, the protein found in wheat, rye, barley, and sometimes oats. 

Symptoms of CD can be any one of or several of the following:  fatigue, anemia, unexplained weight loss or weight gain, skin blisters or other skin disorders, mood swings, depression, anxiety,  miscarriages, osteoporosis, irritable bowel, headaches, a bloated feeling, flatulence (gas), profuse diarrhea, severe stomach aches, joint pain, and possibly others that just haven’t been linked to CD yet.  As your body becomes more intollerant to the gluten in your diet, you may experience numbness or tingling in your face and hands.

With that wide of a variety of  symptoms, you can see why self diagnosing is so difficult.  If you experience or are experiencing any of these symptoms, check with your doctor to see if you may have CD.  You will want to ask for the following blood tests:  IgA antihuman tissue transglutaminase (IgA TTG) and IGA endomysial antibody immunofluoresence (IgA EMA).  That is a mouthful,  I know, however, these tests are currently recommended by the National Institutes of Health (NIH), as being the most accurate.

Then if your blood tests positive for gluten antibodies, you will need to have a biopsy of your small intestine, to check your intestinal villi.  This is done as an outpatient procedure.

After that you go on a Gluten Free diet and feel better.

Just keep in mind, if you suspect you might have Celiac Disease, and you want an actual medical diagnosis, DO NOT start a gluten free diet before your blood test and intestinal biopsy.  You need to be eating gluten for the blood tests and biopsy to be accurate.

Tomarrow I’ll talk about different symptoms for children with celiac disease.

Mary Blackburn

Living Gluten Free